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Research · Studies
Studies
Create, review, approve, and open research studies from one operational registry.
Studies
Study workspace
Reference & policy
Study setup
One configuration surface for research and governance.
These areas form the study record. A study should not move into active collection until the applicable sections are reviewed.
Privacy defaults
Pseudonymous unless the study deliberately chooses otherwise.
Routine analysis should work with participant IDs rather than names. Identity, linkage, research evidence, analysis, and findings are treated as different access layers.
Identity handling choices
No direct identity is collected for the research record.
Identity is stored separately and research records use a participant identifier.
Identity may remain attached only when the study requires it and permissions allow it.
Recruitment/contact details are retained separately from analysis data.
Data separation
Identity is not the research record.
Access can be granted independently at each layer so analysts do not need participant names in order to work with the evidence.
Participant explanation
Plain language should match the actual study configuration.
Your name and contact information, when collected, are stored separately from your research responses. Research records use a participant identifier rather than your name. Access to identifying information is limited to authorized personnel and identifying information is excluded from routine analysis and research exports.
For an anonymous study, this language should instead state that the research instrument does not collect information designed to identify the participant.